So what happens is it usually starts with the procedure to basically wash out my my lungs and suck up as much stuff as possible. That was the bronchoscopy (bronch) on Friday. The rest of the treatment include IV antibiotics and lots of vest (which shakes me from the outside) and metaneb (which blows air into my lungs and shakes me from the inside). Then I do tons of these special coughs called Huff coughs which help move the mucus I've loosened up, out of my lungs. My respiratory treatments take about 45 minutes each time, 4x a day. My antibiotics take another 45 minutes. Then I do physical therapy once a day because exercise is so important. I loved my physical therapist today. He raced me on this crazy bikes in circle all around the hospital. I beat him. Tons of doctors come a couple times a day and examine me and listen to my lungs.
I spend the free time I have doing crafts, music therapy, playing the piano and hanging out with my mom. So am I sick? Well yes and no. Kids with PCD and CF can't get the junk out of their lungs. We need help. I could have gone to dance, I don't feel awful. But I have to get all this stuff out, otherwise I would start to feel awful and years down the road, especially, I could be in big trouble.
The great news is that I am responding really well to all of my treatments. I will get to come home 3 days early on Monday. Woot! Woot! So don't feel sorry for me. This is just part of my life. All of us have to do hard stuff. You can never tell by looking at someone what hard things they might have in their life. Noone would look at me and think my lungs were sick. You just never know. We better just be nice to everybody. :) My doctor and mom and I talked about maybe some different ways to do these cleanouts. Maybe I will start coming in every 3-4 months but only have to stay for 4 days and not do the IV antibiotics. That way it wouldn't be soooo long and hard on all of us.