My sister Callista and I are crossing our fingers, really hoping I don't have to head into the hospital next week. Tomorrow I have to cough up a bunch of junk from my lungs to send to the hospital lab for them to check and see what kind of bacteria is growing in my lungs and how much. I've had more stuff in there lately, so we have to stay on top of it. PCD is weird like that. It is really hard to tell from the outside all the crazy stuff going on inside of me. On Wednesday I will see my Pulmonologist, (that's a lung doctor) Dr. Pfeffer. She is the best. I will blow into a machine and a computer will try to measure how well my lungs are working. The labs and the blow test results will determine if I will have to go in. I'm nervous, but not really scared. I know what to expect, if I have to go into the hospital. It's better to get this done with now, instead of waiting. I have some really exciting things coming up with releasing my first song "Stronger Than Before," my Ballroom team, producing my music video, and modeling. If I go in the hospital I will have to have IV antibiotics for a month. This time we will make sure to get some different tape for my PICC line because I was allergic and it was awful. We will also get this spray stuff to help change the bandages, it feels like changing 500 bandaids all at once!!!! If I don't get a rash I will hopefully be able to continue with my music. But I can't dance :( I will keep you posted! Thanks for your support!
Hey everyone I'm Ellery. I'm 13 years old and welcome to my blog! I am and actress, singer, model, musician, songwriter, surfer, dancer and advocate. I'm living everyday as if it were my last.